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Living With Systemic Mastocytosis

September 9, 2026 5:30 PM - 7:00 PM (EDT)

Description

This patient-focused program features expert-led educational discussions designed to empower individuals living with Systemic Mastocytosis and their caregivers. The program will provide an overview of Systemic Mastocytosis, current standards of care, available treatment options, and new and emerging therapies. Participants will also learn practical strategies for recognizing and managing symptoms and treatment-related side effects to help improve quality of life. In addition, the program will highlight financial support and assistance resources, address the unique needs of caregivers through dedicated caregiving guidance, and showcase the role of patient advocacy organizations in providing education, community, and ongoing support. Through evidence-based information and expert insights, attendees will gain the knowledge and resources needed to make informed decisions and navigate their care with greater confidence.

Contact Information

Name: Amanda Bridges
Phone: 7274583566
Email: amanda@flasco.org
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